On the basis of child advocacy and social commitment; The purpose of The Missing Piece Foundation’s Chosen to be Angel’s Project is (CTBA) to initiate and support capacity-building to community-centered initiatives that address the physical, emotional and practical challenges of chronic childhood illness.
The Missing Piece Foundation seeks to create a community of individuals and organizations nationwide that both understands the challenges and opportunities that chronic childhood illness presents for children and their families and is committed to collaborating to address and resolve the physical, emotional, and practical issues faced by the survivors. Through the responsible investment of The Missing Piece Foundation (TMPF) resources in community-centered initiatives, we join our fellow organizations in reaching out to the underserved, raising and addressing neglected survivorship issues, and impacting all survivors across the United States in a personal, meaningful way.
CTBA Project Goals
1. Develop an infrastructure for a comprehensive database on childhood illness survivorship.
2. Develop, test, maintain, and promote patient navigation systems that can facilitate optimum care for children with chronic illness.
3. Establish and/or disseminate clinical practice guidelines for each stage of chronic illness survivorship.
4. Develop and disseminate public education programs that empower children and their families to make informed decisions.
5. Conduct ongoing evaluation of all activities to determine their impacts and outcomes and ensure continuous quality improvement of services.
6. Minimizing preventable pain, disability, and psychosocial distress for those living with, through, and deadly/chronic childhood illness.
7. Supporting the children and their families in accessing the resources and the family, peer, and community support they need to cope with their illness.
8. Assess and monitor the health of communities and populations at risk to identify health problems and priorities.
9. Formulate public policies, in collaboration with community and government leaders, designed to solve identified local and national health problems and priorities.
10. Assure that all populations have access to appropriate and cost-effective care, including health promotion and disease prevention services, and evaluation of the effectiveness of that care.